Materials for Carepartner Group Facilitation

Thank you for your interest in utilizing our carepartner book group discussion materials.  As a first and important step, please be sure to carefully read the Facilitator Overview.  In addition to the materials provided by Stroke Onward, we are pleased to provide access to additional field-tested resources created and contributed by our generous community.

Just as every stroke is different, each book group is different. While these materials are newly launched to the public, they have been implemented successfully in settings accommodating varied logistics, preferences, and constraints.  We encourage experienced facilitators to utilize provided materials in any thoughtful and responsible way that best serves your group members’ experience and self-discovery in a supported and safe environment.

We wish you and your group a meaningful and beneficial healing journey.  Should you have any questions about our materials or suggestions for how to improve them, please let us know.  We welcome and encourage candid feedback about your experience, and request that all facilitators, group members and any student clinicians utilizing these materials complete a brief online survey at the completion of your book group.

To obtain site-specific survey links, or to share input or a question, please reach out to programs@strokeonward.org.

Stroke Onward Materials

Facilitator Overview

Our Carepartner resources were developed and tested in collaboration with community partners at the Stroke Comeback Center and Adler Aphasia Center.  This overview represents a compilation of guidance based on the experience of these users, including input from their group members.   There are a variety of ways to utilize discussion materials, and each facilitator should explore and carefully consider what approach(es) will work best to meet group and individual needs.  While we are happy to share ideas, we do not prescribe or require any one size fits all solution.  The goal is to find a comfortable and effective way for all participants to connect with the book’s content– and more importantly, each other.

Chapter by Chapter Points of Reflection:

Each chapter document below contains Points of Reflection (questions) to prompt group discussion.  Facilitators may choose to distribute questions in advance of group discussion to encourage self-reflection, or simply use these and other questions to guide the group session.

Chapter Discussion Prompts:

  • An abbreviated list of questions geared for those groups with less time to devote or that prefer a less intensive experience. Facilitators may elect to focus on one or a small number of questions based on the interests and goals of the group.

Select Audio/Visual Resources:

The following recorded resources are available for your use and links may be shared directly with group members:

Community Resources

We are honored to share with you a growing list of tools and guidance contributed by highly experienced facilitators. The intent of sharing Community Resources is to help new users avoid reinventing the wheel and to continuously increase the range and quality of available support material as group experience grows.

If you create a resource that you think would be helpful to others, and would like to contribute it as a Community Resource, please contact programs@strokeonward.org. We cannot guarantee that all submissions will be posted, but we do guarantee they will be appreciated. By submitting your material, you grant permission to Stroke Onward to utilize your material and distribute it to others, with appropriate attribution and our thanks.

Word Cloud Activity

A sample group activity to help unpack the concept of “identity”, especially for those who may not be familiar.

Ellen Bernstein-Ellis, MA, CCC-SLP

Group Ground Rules

A sample set of participation ground rules around respectful interactions, confidentiality, and other group expectations to help make the group more productive and facilitation easier.

Ellen Bernstein-Ellis, MA, CCC-SLP

References and Resources

A sample resource/citation list developed by aphasia program supervisors as a manageable list of introductory materials for student clinicians.

Acknowledgments

Stroke Onward is deeply indebted to the following individuals and institutions for their leadership on guide development, generous collaboration, and extremely impactful contribution to our community:

Carepartner Content:

Regina Richardson
Devoted Carepartner and Survivor Advocate
Board Member

Tamara Heimlich, PhD
Life Coach and Research Associate

Additional Content:

BU Aphasia Resource Center- need to crop-1

Boston University, College of Health and Rehabilitation Sciences: Sargent College

Elizabeth Hoover, PhD, CCC-SLP, BC-ANCDS,  Clinical Associate Professor, SLHS, Clinical Director, Aphasia Resource Center

Anne Carney, MS, CCC-SLP, Lecturer, SLHS

California State University East Bay, Speech, Language and Hearing Sciences

Ellen Bernstein-Ellis, MA, CCC-SLP, Director, Aphasia Treatment Program, Norma S. and Ray R. Rees Speech, Language and Hearing Clinic

Sophia Kanenwisher, MA, CCC-SLP, Lecturer and ATP Interim Co-Director