17 Jun Book Materials for Survivor Group Facilitation
Thank you for your interest in utilizing our aphasia-friendly Survivor Book Group Discussion Guide. As a first and important step, please be sure to carefully read the Facilitator Overview. In addition to the materials provided by Stroke Onward, we are pleased to provide access to a range of field-tested resources created and contributed by our generous community.
Just as every stroke is different, each book group is different. Prior to their release, these materials were implemented successfully in a range of settings accommodating varied logistics, preferences and constraints. We encourage experienced facilitators to utilize provided materials in any thoughtful way that best serves your group members’ experience and self-discovery in a supported and safe environment.
We wish you and your group a meaningful and beneficial healing journey. Should you have any questions about our materials or suggestions for how to improve them, please let us know. We welcome and encourage candid feedback about your experience, and request that all facilitators, group members and any student clinicians utilizing these materials complete a brief online survey at the completion of your book group.
To obtain site-specific survey links, or to share input or a question, please reach out to programs@strokeonward.org.
Stroke Onward Materials
All book group resources were developed and tested in collaboration with our team of aphasia experts at Boston University and California State University East Bay. Prior to broad release, materials were also piloted in a variety of ways. This overview represents a compilation of guidance based on the experience of these users, including input from their group members and student clinicians.
Chapter by Chapter Materials:
Each chapter package below contains a one-page chapter Summary in paragraph form, a longer set of numbered Highlights with additional detail and heavier use of bolding, and approximately ten Points of Reflection (questions) to prompt group discussion.
- Chapter 1 – Slow Fall Off a Cliff
- Chapter 2 – Everything Can Fail
- Chapter 3 – A Teacher Without Words
- Chapter 4 – Moving Forward
- Chapter 5 – The Grind of Therapy
- Chapter 6 – Let Me Talk
- Chapter 7 – Grief
- Chapter 8 – Lean On
- Chapter 9 – Stroke Is a Family Illness
- Chapter 10 – Partners and Intimacy
- Chapter 11 – People are Social Animals
- Chapter 12 – How the World Responds
- Chapter 13 – Activities Adapted
- Chapter 14 – Careers and Callings
- Chapter 15 – Dealing with Financial Strain
- Chapter 16 – Advocating in the U.S. Medical System
- Chapter 17 – Reclaiming the Basics
- Chapter 18 – Choice in Our New Identities
- Chapter 19 – Fulfillment Through Growth
- All Chapters
Select Audio/Visual Resources:
The following recorded resources are available for your use and links may be shared directly with group members:
Free access via BARD/ National Library Service for the Blind and Print Disabled
Available via SoundCloud:
- Voice Recorded Chapter Summaries
- Voice Recorded Survivor Biographies (from Identity Theft, Appendix 1)
Available via YouTube:
Community Resources
We are honored to share with you a growing list of tools and guidance contributed by highly experienced facilitators. The intent of sharing Community Resources is to help new users avoid reinventing the wheel and to continuously increase the range and quality of available support material as group experience grows.
If you create a resource that you think would be helpful to others, and would like to contribute it as a Community Resource, please contact programs@strokeonward.org. We cannot guarantee that all submissions will be posted, but we do guarantee they will be appreciated. By submitting your material, you grant permission to Stroke Onward to utilize your material and distribute it to others, with appropriate attribution and our thanks.
Includes a wealth of suggestions to guide first day, last day and weekly sessions. A sample day one schedule, activities, ice breakers and a typical post session email are also featured.
Ellen Bernstein-Ellis, MA, CCC-SLP
A template that may be adapted and used to introduce the book and discussion plans to your group.
Ellen Bernstein-Ellis, MA, CCC-SLP and her team of student clinicians
A sample group activity to help unpack the concept of “identity”, especially for those who may not be familiar.
Ellen Bernstein-Ellis, MA, CCC-SLP
A sample resource/citation list developed by aphasia program supervisors as a manageable list of introductory materials for student clinicians.
Acknowledgments
These materials would not be possible without our generous collaboration partners:
Boston University, College of Health and Rehabilitation Sciences: Sargent College
Elizabeth Hoover, PhD, CCC-SLP, BC-ANCDS, Clinical Associate Professor, SLHS, Clinical Director, Aphasia Resource Center
Anne Carney, MS, CCC-SLP, Lecturer, SLHS
California State University East Bay, Speech, Language and Hearing Sciences
Ellen Bernstein-Ellis, MA, CCC-SLP, Director, Aphasia Treatment Program, Norma S. and Ray R. Rees Speech, Language and Hearing Clinic
Sophia Kanenwisher, MA, CCC-SLP, Lecturer and ATP Interim Co-Director
In addition we would like to thank the fabulous team of student clinicians who supported this project with commitment, creativity, and sensitivity:
Sarah Charbonneau
Grace Gahan
Roxanne Segina
Maya Jacobs
Yasmin Jacobs
Shika Narayan
Carmina Sanchez
Haleigh Stevenson
Michelle Valdez
Prior to public release, materials were field tested by and improved with thoughtful feedback from an extraordinary pilot group of facilitators, and their associated group members and student clinicians. We would like to thank each organization below for their important contributions:
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