Raising Awareness

More than 800,000 people in the United States — 13.7 million worldwide — experience a stroke every year. In almost every conversation the Stroke Onward team has had with stroke survivors, their families, and professional caregivers, one experience seems incredibly consistent: virtually all of the guidance, information, and resources provided in recovery speaks only to their physical recovery. With little or no help to guide their emotional recovery, they are left to figure it out on their own — and many fail to do so.

Stroke Onward wants to change that by helping to create a stroke system of care that provides whole-person care.  A critical first step is helping more people to understand how important it is to regularly and effectively address the emotional journey in recovery, enabling stroke survivors and carepartners to rebuild their identities and truly rewarding lives.  We do this primarily through speaking engagements and writing, sharing both research-based information and powerful, personal perspectives on the importance of emotional recovery.

In the Covid induced Zoom world, Debra & Steve presenting at Aphasia Access Teach In. Pictured with (L-R): Todd Von Deak and Elizabeth Hoover - June 2020.
In the Covid induced Zoom world, Debra & Steve presenting at Aphasia Access Teach In. Pictured with (L-R): Todd Von Deak and Elizabeth Hoover - June 2020.

Speaking: We speak regularly — in person and virtually, to both large groups and in smaller, facilitated sessions.  We speak with healthcare providers at conferences and other gatherings; faculty and students in the training programs of future stroke care providers (speech language pathology, counseling, and others); and very importantly with stroke survivors, caregivers, and families.  We’re also frequent guests on podcasts.

Writing: We’re sharing our message wherever it can make an impact.  Our most significant work is through a collaboration with the American Stroke Association, writing a column for their Stroke Connection newsletter and website.  We also write for our own blog and other general and organizational publications, usually by invitation.  And, of course, we encourage others to write about our work in their own publications and communications with a relevant audience.

Examples of our efforts to Raise Awareness are in our Press Room and Columns and Blogs.

  • Can we support your work?

  • Our co-founders and team bring a wealth of professional and lived experience that can create a powerful program for your event.  We can be available in-person or virtually for keynote presentations, panel discussions, workshops, seminars, and more. While we mostly speak in the context of stroke care, we also speak to broader disability groups and, bringing professional backgrounds in academia, diversity and inclusion, and nonprofit leadership, we can create compelling programs for corporate and nonprofit groups as well.  Our speaking fees vary significantly based on ability to pay — diversity, inclusion and health equity are core to our mission and therefore influence our speaking priorities and fees.